Welcome to the Garden of Hope from the Lowe Syndrome Trust
Watch a video message from Jonathan Ross
Message from Penny Lancaster Stewart,
Lowe Trust Patron
Thank you for visiting the Lowe Syndrome Trust Garden of Hope. The Trust funds research into the rare, incurable and debilitating childhood disease, Lowe Syndrome, and over the last decade, although small, it has been the world’s lifeline for research into a desperately needed cure.
The syndrome affects the brain, eyes, kidneys, bones and muscles sadly leading to a short life expectancy. Symptoms of the disease seem endless...cataracts, glaucoma, seizures, epilepsy, arthritis, scoliosis, weak bones and muscles, rickets, kidney wasting. Some children are blind, some never walk or talk dependent on the severity of the disease.
Please help us find a cure for this devastating disease by joining us in this campaign to raise one million pounds in just 10 months.
To find out more about Lowe Syndrome and research underway, funded by this small charity, please visit www.lowetrust.com.
Penny Lancaster Stewart
What is the Garden of Hope?
The Garden of Hope is a campaign to raise one million pounds within ten months for Lowe Syndrome research. You are invited to enter your chosen celebrity garden and write your personal message to him or her on a leaf! Over the coming months, through your donations, the trees will become covered in leaves. And we’d like to let you know where your money is going, so in a little while we’ll tell you which project the funds have been donated to and then you can track its success.
You can add a leaf to more than one tree, giving you the opportunity to be part of several research projects. And if, as an individual or corporate donor, you’d like to make a bigger contribution, you can have a larger presence on a page.
How do I add a leaf?
Click a photo to visit a celebrity tree in the Garden of Hope, where you’ll see how leafy their trees are. Then simply add a leaf to the tree of your choice and confirm it with a £5 donation.
You can also give your name, or remain anonymous, and, if you wish, a message of your choice to the celebrity. Names and messages will be displayed when you click on the tree leaves.
If you’d like to donate more, just add more leaves !
Sponsorships are also available.
In memory of Daniel, Aged 6, who died of Lowe Syndrome
"The charity really has done amazing work in the last ten years, supporting families affected by Lowe Syndrome and funding vital research into a cure. I am encouraging everyone to get involved in the Lowe 10 month campaign to raise one million pounds and make it a truly memorable year for the charity."
Jonathan Ross
Trustee,
The Lowe Syndrome Trust
"I know I am one of many that realise how lucky we are to have good health and find it overwhelming when you think of all the different charities that need help, especially those that need vital funds for research towards cures for incurable and debilitating disease".
Penny Lancaster Stewart
Patron,
The Lowe Syndrome Trust








